Developing Patient-Reported Outcome Measures for Pediatric Cancer Surgery: A Pediatric Surgical Oncology Research Collaborative Study

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Consortium PIs: Roshni Dasgupta, MD

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Study Aims:

1. Adapt existing PROMs and identify new items for pediatric cancer surgery measures.

2. Test feasibility of adapted surgery-specific PROMs in a clinical setting.

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Long-Term Outcomes and Quality of Life in Children and Adolescents with Genitourinary Rhabdomyosarcoma

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Consortium PIs: Rodrigo Romao, MD, Nicholas Cost, MD, Amanda Buchanan, MD

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Study Aims:

1. Describe long-term bowel and bladder and overall health-related quality of life in survivors of GU RMS (bladder / prostate and vagina).

2. Describe local control modalities utilized in the treatment of children and adolescents with GU RMS.

3. Describe event-free survival and overall survival in children and adolescents with GU RMS.

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Late Effects in Children with Wilms Tumor Treated on the COG ARENO Studies

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Consortium PI: Peter Ehrlich, MD

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Study Aim:

1. Describe the late effects observed in adolescent survivors of Wilms tumor who were treated on the AREN renal tumor studies.

 

 

 

The Applicability of Recommendations Resulting from Ultrasonographic BI-RADS Classification in Adolescent Females

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Consortium PIs: Barrie Rich, MD and Sara Mansfield, MD

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Study Aim:

1. Determine if the American College of Radiology Ultrasonographic BI-RADS classification system and its associated treatment recommendations are applicable to adolescent females with breast masses.

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Multimodal Treatment of Desmoplastic Small Round Cell Tumors

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Consortium PIs: Tim Lautz, MD and Roshni Dasgupta, MD, MPH

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Study Aims:

1. Determine the comparative survival and treatment-related morbidity of complete cytoreductive surgery, whole abdomen radiation, and heated intraperitoneal chemotherapy.

2. Identify how the associated morbidity of treatment components (i.e., complete cytoreductive surgery, whole abdomen radiation, and heated intraperitoneal chemotherapy) impact survivors’ quality of life.

3. Explore the feelings of parents and patients about the treatment they received and the potential side effects of received treatments.